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Welcome to ASHLEY EAGLE's Walk With Me Page - Part of Jackson Henry's Journey

ASHLEY EAGLE

Welcome to Team Jackson! Below you will find a brief history on Jackson's journey. Jackson has benefited greatly from the staff and services that Easterseals provides and we are incredibly thankful to be a part of such a wonderful team. Our family sincerely appreciates your support for these sweet kiddos.

Jackson Henry Eagle was born in April 2015 and went straight to the NICU because of wet lungs. He weighed over 8 lbs. so he was definitely the big boy in the unit, and after five days he was released to go home. There were feeding issues and our older son, Jacob, had had Pyloric Stenosis so we weren't surprised when Jackson had to have surgery for the same thing.

Life seemed to be settling into a routine and then just before Labor Day weekend 2015 Jackson developed a horrific bout of diarrhea and fever. My sweet 5-month-old was in such distress! We had seen our PCP but then the seizures started. Jacob had experienced febrile seizures but these were different. My mother-in-law and I took Jackson to Arkansas Children's Hospital. The early diagnosis was salmonella but in their testing, they saw some tubers on his brain via CT scan. We were then admitted and received a full work up. The team of neurologists kept going back to Tuberous Sclerosis, which is a genetic seizure disorder that affects all your major organs. The MRI and blood tests confirmed that it was in fact Tuberous Sclerosis Complex 2.

We were released with a seizure medicine that controlled his seizures really well for a few months. But Christmas Even came and Jackson started having another round of seizures. After many more phone calls to ACH and upping his dose of medicine, we decided to take him back to the ER the day after Christmas. We were admitted and put on an EEG machine for 24 hours that confirmed that Jackson was experiencing infantile spasms. This was not the news we wanted to hear. Infantile spasms are the kind of seizure that cause damage to the brain. We were devastated and sent home with more medicine.

After much research, I learned that LeBonheur in Memphis, TN, had a Tuberous Sclerosis Specialty Clinic with a team of doctors who work together to help children just like Jackson. We had our first visit in May 2016 and we haven't looked back since. While we were in inpatient care at LeBonheur they suggested Jackson have an evaluation to see where he stood mentally and physically. The test revealed that Jackson was delayed and needed some therapies.

We returned home to Stuttgart and started researching therapy options. I called our local Easterseals and to my surprise they could start therapy right away. We feel so blessed to have a wonderful facility like Eastersealss in our hometown. The staff has been absolutely amazing to my family. Jackson started the full day program in August 2016 but after two med flights to Memphis because of his seizures we knew that he needed more individual care because of his compromised immune system. We are so fortunate that he continued to receive outpatient therapies at Easterseals.

Fall 2017 rolled around and Jackson started in the 2-year-old classroom at Easterseals and has done very well. He continues to receive speech and physical therapy in Stuttgart and we bring him to the Little Rock outpatient therapy building for occupational therapy.

We feel so blessed to be a part of the Easterseals family and look forward to many more year and progress!

Walk With Me is a 5k Run and Family Fun Walk that raises awareness and funds for Easterseals Arkansas! The purpose of Easterseals is to change the way the world views and defines disabilities by making profound, positive differences in people's lives everyday. Easterseals helps thousands of individuals with disabilities and their families each year by providing exceptional services to ensure that all people with disabilities and special needs have equal opportunities to live, learn, work, and play in their communities!

Walk With Me is on Saturday, August 18, 2018 Easterseals Outpatient Building on Woodland Heights. You can join as a 5k Runner, Family Fun Walker, virtual walker and/or make a donation! Every dollar raised stays right here in Arkansas to help Easterseals serve our community!



Thanks for your support! - ASHLEY

Comments

$450
raised of $1,000 goal
 

Recent Donations

$100.00
1. ADAmy Dean
2. AEAshley Esposito
Love you guys! Go Team Jackson!
$25.00
4. BGBilly And Gail
Love you guys. In memory of Betty and Grandma.
5. MGMary & Keith Glover
Go Team Jackson
6. JDJulie Dyer
Captain

Team Jackson Henry's Journey

$700
$2,500